Now faith is the substance of things hoped for, the evidence of things not seen~ Hebrews 11:1
This is about the journey of a SUPER BOY who is 1 in 100. This is his journey about living with Total Anomalous Pulmonary Venous Return & Atrial Septal Defect and Forever Battling HHT AVM's
Saturday, June 7, 2014
Here in this moment
As I plan out Cole's 1st Birthday/Heart Birthday party I am just amazed at how so much has changed. At this time last year I was not planning a party I was making arrangements for something no parent should ever have to plan. I lived with my heart in the pit of my stomach 24/7. I can remember holding Cole all day, I don't think I put him down much at all. Cole still has his struggles but we will get to the root of the problem soon enough. I want so bad for all my fears to disappear but for now I will remember I am blessed to be here at this very moment in time with Cole. I cannot wait to celebrate with my Super Cole. My amazing gift received received from God.
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