Cole's echo showed many great things one of which I HAD NO IDEA WAS STILL A PROBLEM. Our new card informed us that from Cole's medical records it states that his ASD was repaired along with the TAPVR but that there was still a residual hole. Nice we thought the hole had been closed I'm wondering why are last card decided that I should not know that my son still had a small hole in his heart. Jan Cole had an echo and the hole in the notes stated that the hole was closing so on Tuesday Dr. Punn confirmed that the hole is completely closed now. You can only imagine how furious I was after finding this out.
Cole's repair is healing beautifully but he is still having his low oxygen spells accompanied with grayish blue skin about twice a week. All the Dr. can think that is causing these spells could be an arrhythmia so Cole was sent home with a halter monitor and a 30 event monitor to record these spells. If in fact this is not heart related we will be referred out to a few more specialists to determine the cause. I am so happy to be getting the medical care we are now that we are at a place where my voice for my son and someone will listen to me. Not to talk bad about past physicians Cole has had but because they had a MD in front of their names they could care less what I had to say to a point. They treated me like a crazy overreacting mom. Well this mom is right something is going on with her sweet boy and Lucile Packard Children's Hospital will be the ones to figure out the cause.
Cole is happy and trying to walk he is growing and we couldn't be happier for the gifts the Lord has blessed us with. I at one point never thought of Cole walking or getting into mischief yes Cole can be a trouble maker at times and I love it.
Mr. Cole Waiting Cardiology Appointment
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