Oh the worry of a worrisome mama

Worries oh worries can calgone take me away LOL. Tomorrow is Cole's 6 month post-op Echo I am worried but its natural. I am sure everything will look great just have that wrenching pit aching worry in my gut. I am hoping that will ease over time.

 I will keep you update on how the appointment goes tomorrow.

~When I am afraid, I will trust in you~ Pslam 56:4

TAPVR HEART

I have never posted a picture of how TAPVR looks opposed to a normal heart or much information of what TAPVR entails. I will soon until then  check out the picture I looked up from CHOP.

The Change up

So LOTS going on. Can't say much as of yet but lets just say soon all of our family in California will be meeting Cole here very soon.


To be continued.........................

Happy 6 Month Heart Birthday Cole

January 5th 2013 we celebrated Cole's 6 month heart birthday. It is so hard to believe 6 months ago my baby went through OHS. We have come a long way to where we are now. To say life after OHS is easy and worry free is not true at all. I still have so many concerns about Cole and am in constant worry over him. He gets dusky often as well as grey and his lips and inside of his mouth are icy blue at least 3 times a week.  He is getting big now 19lbs 10oz and 26in wow has my guy grown.

He loves to watch football with Daddy and he wears his jersey every time our team is playing. He loves, loves, loves Mickey Mouse he watches that show daily and has a stuffed Mickey doll as well. Cole can say Dadda and boy does he say that a lot along with baba (bottle) and hi. I wish he would say Mama LOL . He tries to say other words but so far its just baby babble. Still on formula but eating solid foods now too. He loves his veggies and applesauce.

Crawling forward is about to happen in the Pombo house. Cole can crawl backwards and working everyday to go forward, although the he can't go forward he sure gets around. No teeth yet but one is about to pop to the surface.

We still have severe acid reflux and our dealing with that with medication and watching what he eats. We have our 6 month cardiologist appointment in late January. Praying the scar tissue is not interfering with the repair and that the left ventricle is doing better than it was in September when we were admitted to SCH when Cole stopped breathing. More to come after our cardiology appointment. For now Cole is smiling, happy and we are loving every minute and day we are blessed to spend with him.

Heaven broke into this moment, it's too wonderful to speak
You're worth all of me, you're worth all of me
So let me recklessly love you, even if I bleed
You're worth all of me, you're worth all of me

 You're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing any fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start
It's where I'll start