This is about the journey of a SUPER BOY who is 1 in 100. This is his journey about living with Total Anomalous Pulmonary Venous Return & Atrial Septal Defect and Forever Battling HHT AVM's
Friday, March 6, 2015
Our New Home Life
So Stanford let us go and boy oh boy we couldn't be happier especially Cole.
A lot is different now that Cole is on oxygen 24/7 my how things change in a blink of an eye. A toddler on oxygen is a challenge let me tell you, praying for strength daily. I will have to finish this post later just know we are home and learning and I have had highs and lows as so has Cole.
To Be Continued .........
Zofran Lawsuit Did you Take in your 1st Trimester?
So this has been a topic on my blog once before and it caused an up roar which resulted in me taking it down. Here we are again, did you take Zofran during your 1st Trimester and your baby was born with a birth defect?
Well guess what, I DID take this crap the real Zofran because I was extremely sick and couldn't stop throwing up I was only 6 weeks pregnant with Cole at this time. Today I seen this ad so I called the number and spoke with a Lawyer. This isn't about searching for money this is about the principal that these doctors throw us meds that they don't know what it can do to our unborn fetus's. If you think you have been effected by this drug click on the link below. With all of us we can make sure another baby doesn't result from a birth defect by a sick mama that has been prescribed this drug.
http://zofranresourcecenter.com/
Tuesday, March 3, 2015
Cath Lab
Yesterday March 2nd we went to the cath lab with the amazing Dr. Perry. Well guess what Cole did great but no answers so back to the pulmonary team we go. To see such a brilliant Dr. sit before be scratching his head in utter disbelief was something else. You could see his wheels turning and you could also tell he wished he could of given me some sort of answer as to what is going on with Cole. There is still a residual ASD but its so tiny it's doing no harm and will close on its own.
Cole is ready to escape
The recovery went well, Cole was on light oxygen in the recovery room and wanted his mama which hey as exhausted as I was I wasn't complaining. I held my baby so happy all had went well frustrated we still have no answers but I have my baby. The night was ruff heart rate was super high or super low his sats were low throughout the night and he started to run a pretty good fever. By morning he has been fantastic and his leg where they went in a little sore, which hasn't kept him from being ornery not one bit. Next step back to pulmonary for more testing this afternoon.
By the way what ever they gave Cole to calm down before they put him under made him laugh hysterically I wish I could of got it on video. LOL my poor baby he is so tired of getting tested, poked and prodded. We are on day 5 of being at LPCH.
Not too low I think we can go home
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