Video of Total Anomalous Pulmonary Venous Return

 Spreading awareness of Congenital Heart Defects !!!!

I want to show you what TAPVR looks like. I found the perfect video on YouTube please click to watch.

Insurance is a Joke!!!!! Thank you to employers that mess with your employees like this !!!

BIG RANT  so move along if you don't like what I have to say. Keep your negitive comments to yourself if you have anything rude to say about my post.

 Cole will not be seeing the Speech Pathologist right now till I figure how to pay for the visit. $500 is due for each appointment till his $4000.00 deductible is met, which they will take payments for but still. Why do I have insurance it's just some discount and why is it I am living paycheck to paycheck but don't qualify for jack squat. Affordable health care don't get me started with that. If my Husband goes to get a better job with a friend he knows it would be amazing financially for our family BUT the job has no health care offered. No biggie I will apply for affordable health care UMMMM $1000.00 a month to cover our family how is that affordable?????

I am at a loss of what to do. I just had to cancel the appointment for Cole what a sad world we live in my baby needs help but can't get it because I can't pay the deductible!!!!!



F-U employers that mess with your employees like this !!! Because of my husbands company our deductibles and insurance coverage has changed to save the company money.


NICE and F U OBAMA affordable what????? Guess I should have my husband quit his job and then I can go on welfare and milk the system and go to the ER for FREE on the tax payers dollars every time my kid coughs. (I'm really not going to do that just figuratively speaking)


 What's the world coming too? RANT OVER

Speech Pathologist Appointment

 It has been some time since I've gotten a chance to blog. Busy busy summer, we had a great visit from my daughters who live in Georgia. Catching up with family since we have been gone from California for almost 2 years and oh the one kid sick after another. This summer has been a whirl wind of cold flus and more. So here is an update on Cole. 

Cole is now 15 1/2 months old  23.6 pounds and has 7 teeth he can walk and somewhat run. He is very bowlegged but its okay we will fix that. Meals are a bit of a challenge as Cole is lactose intolerant that makes milk pretty pricy depending on who has lactose free vitamin D milk it can run almost $10 a gallon.  Let me tell you this boy can put down some milk. Cole is still drinking from a newborn nipple as anything else chokes him. This is very frustrating and makes me worry every time he drinks or eats certain foods due to the danger of aspiration and choking to death. 

We have the best sippy cups, I've tried it all but the same outcome chokes until he throws up and turns blue. So we will be seeing a speech pathologist on Monday and get Cole the help he needs. Cole also doesn't say many words.  He doesn't say mama :( he tries so hard to talk but just gets frustrated and it makes him so angry. I'm sure the dr will be working on this as well. 

It's almost time for RSV shots this is the time of year I'm sure Cole dislikes monthly shots but its for his own good. November is his Cardiolgy appointment with Dr. Punn at LPCH. I'm excited to see his echo.  We've had less blue and low o2 spells but it still does happen from time to time. Coles skin is still a crazy mess by his scar he just breaks out in random hives these days. Creams washes and more creams, we will find the groove in that soon. 

Cole is a grouchy grizzly bear a lot but I love him to the moon and back. One thing that makes Cole extremely happy and very excited  is the Disney movie Frozen he is totally obsessed with this movie we watch it about umm 3 or more times a day lol he loves Olaf and we love our Colaf. <3