Thursday, April 17, 2014

How God Chooses a Heart Mom


I found a beautiful post on Facebook and thought I would share this. I am not sure who wrote it but in touched my heart and brought tears.

 

Did you ever wonder how the mothers of heart babies are chosen?

Somehow, I visualize God hovering the earth, selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to take notes in a giant ledger.

Finally, he passes a name to an angel and smiles. “Give her a heart baby.”

The angel is curious. “Why this one God? She’s so happy.”

“Exactly,” smiles God. “Could I give a heart baby a mother who knows no laughter? That would be cruel.”

“But does she have patience?” asks the angel.

“I don’t want her to have too much patience, or she’ll drown in a sea of self-pity and despair.

Once the shock and resentment wear off, she’ll handle it.

I watched her today. She has that sense of self and independence so rare and so necessary in a mother.

“You see, the child I am going to give her has a world of his own. She has to make him live in her world, and that’s not going to be easy.”

God then smiled. “This one is perfect. She has just the right amount of selfishness.”

The angel gasps, “Selfishness!” Is that a virtue?”

God nods. “If she can’t separate herself from the child occasionally, she will never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn’t know it yet, but she is to be envied.

She will never take for granted a spoken word. She will never consider a step ordinary. When her child says “momma” for the first time, she will be witness to a miracle and know it.

 I will permit her to see clear the things that I see- Ignorance, cruelty, prejudice-and allow her to rise above them.

She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surly as she is here by my side.
 
Here is my precious gift sent from above Cole Anthony

Wednesday, February 26, 2014

2 Teeth and Counting

It's official Mr. Cole has 2 bottom teeth. A bittersweet moment still a baby but not so much. Although he will always be the baby :) 1 more tooth is on the peak of popping through an eye tooth before the front teeth LOL.




SLOW DOWN SWEET BOY



Monday, January 27, 2014

Oh the worry of a worrisome mama

Worries oh worries can calgone take me away LOL. Tomorrow is Cole's 6 month post-op Echo I am worried but its natural. I am sure everything will look great just have that wrenching pit aching worry in my gut. I am hoping that will ease over time.

 I will keep you update on how the appointment goes tomorrow.




~When I am afraid, I will trust in you~ Pslam 56:4

Friday, January 10, 2014

TAPVR HEART

I have never posted a picture of how TAPVR looks opposed to a normal heart or much information of what TAPVR entails. I will soon until then  check out the picture I looked up from CHOP.


The Change up

So LOTS going on. Can't say much as of yet but lets just say soon all of our family in California will be meeting Cole here very soon.


To be continued.........................

Wednesday, January 8, 2014

Happy 6 Month Heart Birthday Cole

January 5th 2013 we celebrated Cole's 6 month heart birthday. It is so hard to believe 6 months ago my baby went through OHS. We have come a long way to where we are now. To say life after OHS is easy and worry free is not true at all. I still have so many concerns about Cole and am in constant worry over him. He gets dusky often as well as grey and his lips and inside of his mouth are icy blue at least 3 times a week.  He is getting big now 19lbs 10oz and 26in wow has my guy grown.

He loves to watch football with Daddy and he wears his jersey every time our team is playing. He loves, loves, loves Mickey Mouse he watches that show daily and has a stuffed Mickey doll as well. Cole can say Dadda and boy does he say that a lot along with baba (bottle) and hi. I wish he would say Mama LOL . He tries to say other words but so far its just baby babble. Still on formula but eating solid foods now too. He loves his veggies and applesauce.

Crawling forward is about to happen in the Pombo house. Cole can crawl backwards and working everyday to go forward, although the he can't go forward he sure gets around. No teeth yet but one is about to pop to the surface.

We still have severe acid reflux and our dealing with that with medication and watching what he eats. We have our 6 month cardiologist appointment in late January. Praying the scar tissue is not interfering with the repair and that the left ventricle is doing better than it was in September when we were admitted to SCH when Cole stopped breathing. More to come after our cardiology appointment. For now Cole is smiling, happy and we are loving every minute and day we are blessed to spend with him.



Heaven broke into this moment, it's too wonderful to speak
You're worth all of me, you're worth all of me
So let me recklessly love you, even if I bleed
You're worth all of me, you're worth all of me
 You're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing any fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start
It's where I'll start


Thursday, December 5, 2013

5 Months Since OHS

It's been awhile since I've posted. Life has returned to a somewhat of a normal life. I am back to work full time now and am handling my anxiety issues a little better now. Enough about me let's talk about Mr. Cole.

Cole is now almost 7 months but today he is 5 months post-op. He still gets blue from time to time and then just gets better. It is the strangest thing ever. We had a horrific scary event take place in September but we will talk about that some other time. Cole trys to sit unassisted and gets stronger everyday on accomplishing his goal. I say goal because he works at it every day and he gets so frustrated when he is unable to sit up by himself. Cole can roll over and scoots backwards. He weighs almost 19 pounds and is 26 inches long. How is that for growing? uh? LOL


My precious boy is amazing and I thank GOD for him daily. I still struggle with the thought of loosing him and often have to fight the feeling that he is only with me for a short time. What is important is he is here now and seems to be doing just fine. He says Dadda, bottle, and some other jibber  jabber

Today I am thankful for being blessed with Dr. Mike McMullan who preformed Cole's TAPVR repair.


I will continue more of this post tomorrow.